| Name |
Comments |
|
|
|
|
|
16 Gerry King
gezza.martin@attiscali.co.uk
|
 Wednesday 31-Mar-2010 19:17:49 BST   |
|
|
|
 |
Three years today since my transplant thanks again to everyone at the QE and to my donor family such kind people.
|
 |
|
|
15 John Parkes
|
| Saturday 20-Mar-2010 23:51:18 GMT |
|
|
|
|
I was being treated for autosomal recessive haemochromatosis since march 2004.prior to which I had been diagnosed as diabetic which I managed via dietry control until Nov.2006,from then on I was transfered onto metformin tablets.These tablets carried me in good stead.I under went routine ultrasound scans on a yearly basis although as far back as april 2003 an undefinable mass was evident.the yeary monitoring showed growth in the mass,confirmed by CT scans and later MRI scans culminating in a diagnosis of primary liver cancer April 16 2007.I was very fit and active for a man of 59yrs,still participating in scuba diving at an advanced leve.I was as a result in shock and not least of all denial with a capital D!After a curtailed pre assesment and a few weeks of trying to carry on as normal and exploring alternative options to transplant. All to no avail and with a prognosis of 6 to 12 months or less if the tumor grew over 5cms. I returned to the Liver Transplant Unit at QE and cap in hand asked to return to the fold. Thankfully I was accepted back and ultimately placed onto the priority list. Within 3 weeks I was transplanted still fit and well! I couldn't believe how well it all went, five and a half hours later to wake up momentarily to see my wife and two daughters. After only 6 days I was allowed home! I am unable to express how thankfull I am to not only the surgeons and physicians but all of the other vital members of the liver team and nursing staff who were all extremely kind and supportive beyond belief! I am currently on basic levels of immuno-suppressents although experiencing some symptoms of kidney stress and low energy. Diabetic control is now via insulin injections but far less traumatic than I imagined. Now the winter is over I am looking forward to becoming much more active. To the family of the donor I extend my deepest sympathy for their tragic loss. and from my devoted family ETERNAL THANKS.
J.P.
|
|
|
|
14 Elaine Walker
elainewalker@indigoclothing.com
|
| Wednesday 12-Aug-2009 12:23:08 BST |
|
|
|
|
Original Entry Dated 08/06/2009, 10:09 pm
It was my 1st year with the Berkshire Royals at this years Transplant games- meeting up with other transplant patients was one of the highlights for me. I met one of your volunteers john who has now given me an I idea for a patient support group in our hospital which I hope one day will be possible. Many thanks to John Gibbs, hope yo enjoyed the games- Elaine walker
|
|
|
|
13 Mikaela Shayle
mikaelas85@aol.com
|
| Wednesday 12-Aug-2009 12:20:48 BST |
|
|
|
|
Original Entry Dated 02/11/2009, 12:25 am
Thank you for your time when we met in November. My dad was waiting ont he transplant list and unfortunalty didnt make it far enought to have one. I jsut want to pass on my thinks to everyone on the team there and what a fantastic job they did of looking after my dad, I truly believe he could not have been in safer hands.
|
|
|
|
12 Margaret Davies
margaretrose1952@yahoo.co.uk
|
| Wednesday 12-Aug-2009 12:18:28 BST |
|
|
|
|
Original Entry Dated 08/25/2008, 11:22 am
Thanks for support in the hospital.
|
|
|
|
11 sue haskins southcott
shaskins@blueyonder.co.uk
|
| Wednesday 12-Aug-2009 12:15:53 BST |
|
|
|
|
Original Entry Dated 08/20/2008, 10:09 pm
Ive had two liver translants , i had one on 17/2/95, after eating cockles caught non hep a and b, then i had dvt and gangerene in that one and had another on 4th august 2006, i take part in the transplant games, doing 100mts, long jump,high jump,badminton,and squash, its great,thank u the queen elizabeth liver unit for giving the gift of life, and thank u donor families too,
|
|
|
|
10 Doreen Warwick
Doreen.W267@talktalk.net
|
| Wednesday 12-Aug-2009 12:12:41 BST |
|
|
|
|
Original Entry Dated 06/15/2008, 5:14 pm
I was transplanted in 1991 and stopped at your stall yesterday at the 3,000th Transplant day. For 12 years I was secretary of the Wessex Liver Support Group. You need lots of support from the medics. and members to keep going. Good luck to your group.
|
|
|
|
9 gerry king
gezza.martin@tiscali.co.uk
|
| Wednesday 12-Aug-2009 12:09:59 BST |
|
|
|
|
Original Entry Dated 06/15/2008, 5:09 pm
I am a transplant receipient and i would like to help in some way.Please let me know by e-mail if this is possible.
|
|
|
|
8 John Haylor
haylor96@hotmail.com
|
| Wednesday 12-Aug-2009 12:07:33 BST |
|
|
|
|
Original Entry Dated 04/24/2008, 10:05 pm
I had my transplant in May 1993 at the QE, and have been very well generally, I consider myself very very fortunate.
|
|
|
|
7 Michaela Weston
westonmicken@aol.com
|
| Wednesday 12-Aug-2009 12:05:27 BST |
|
|
|
|
Original Entry Dated 01/20/2008, 11:41 pm
Hi, i wrote to you in may 2007 just 14 days after my liver transplant, and i thought i would just let you alan and everybody else know that after 9 months things are great, the staff at Birmingham are truly amazing. i can only thank the donor for the greatest ever gift they could have given, life. I still don't know what happened to make my liver stop working and probably never will, but i just want to tell people who have any doubts about a transplant-it isn't easy but after a few weeks and now months it is DEFINATELY WORTH IT, god bless to all involved, Michaela xx
|
|
|
|
6 Kevin CONROY
christineconroy@btinternet.com
|
| Wednesday 12-Aug-2009 12:00:06 BST |
|
|
|
|
Original Entry Dated 11/21/2007, 3:50 pm
I am a liver transplant patient since September, 2006. I suffer from HAEMOCHROMATOSIS.I read about your Website on my visi to Birmingham yesyerday 20.11.07 for a 3 month check up. I am interested in recieving updates about your group and would like to assist wherever possible. My home address is in St.Helens, Merseyside.
|
|
|
|
5 Sue Haskins
shaskins@blueyonder.co.uk
|
| Wednesday 12-Aug-2009 11:57:07 BST |
|
|
|
|
Original Entry Dated 08/02/2007, 8:22 pm
Hi, just to let you know i had my second liver on4/8/06. just came back from the transplant games in Edinburgh won bronze 10 pin bowling, high jump, and a cup for the bravest transplantee
|
|
|
|
4 sue haskinssouthcott
shaskins@blueyonder.co.uk
|
| Wednesday 12-Aug-2009 11:40:31 BST |
|
|
|
|
Original Entry Dated 05/12/2007, 8:55 pm
About time the great Queen Elizabeth Hospital had a LPSG its a great hospital saved my life twice with two liver transplants 95 and 2006. thanks
|
|
|
|
3 John Haylor
haylor96@hotmail.com
|
| Wednesday 12-Aug-2009 11:37:24 BST |
|
|
|
|
Original Entry Dated 02/27/2007, 12:06 am
I am sure this site will help transplant patients. I had a transplant in 1993 and am still going strong thanks to the brilliance of the liver dept. at the QE.
|
|
|
|
2 Jean Stubbs
jean.stubbs@uhb.nhs.uk
Location: Birmingham QE
|
| Wednesday 12-Aug-2009 11:34:38 BST |
|
|
|
|
Original Entry Dated 02/23/2007, 12:25 pm
Hi, I've just been browsing your brand new web site and think it is really really good.
Jean - Secretary to Liver Recipient Transplant Coordinators and Donor Transplant Coordinators.
|
|
|
|
1 Pete Ashcroft
peter.ashcroft@uhb.nhs.uk
Location: Birmingham
|
| Wednesday 12-Aug-2009 11:30:56 BST |
|
|
|
|
Original Entry Dated 02/21/2007, 10:20 am
The site is very good Alan, i'm sure that patients (both pre and post transplant) will find it very helpful.
Pete - Transplant Coordinator (QEH)
|
|
|
|
Guestbook
Total Records:16
